Trottin for Taylor – Trip to raise awareness of Batten Disease
June 1st, 2012 by Ric Hanson
A Monona County resident is hitting the road on a trip across the state of Iowa for her grandson. Tammy Mohr, of Ute, is beginning her trip across Iowa called, “Trottin’ for Taylor” to raise awareness and funding for Batten Disease.
Mohr’s grandson Taylor Lee Mohr has Batten Disease, a rare neurological degenerative disease that comes in four forms and is fatal in every case. The form Taylor has the late infantile form of the disease and there is no cure. Taylor is eight years old and is bedridden, blind, can not walk or talk, and his limbs are contracted. The condition forces him to use a feeding tube.
The trip by his grandmother Tammy will begin in Muscatine on Saturday, and will end in Missouri Valley on Monday, June 18th at the Missouri River. The entire trip from one end of Iowa to the other will be done horse back riding. Tammy welcomes others to join her at any point on her ride.
She plans to stay overnight in several places including stops in Massena, Atlantic, Avoca and Beebeetown. Donations can be made to Tammy Mohr 42883 270th Street, Ute, IA 51060. Any donations made will be delivered to the University of Iowa Batten Research. You can follow Tammy’s journey on Facebook by searching for “trottinfortaylor”.